Mummy went to see her lovely friend who is making necklaces, so far she has had ten sales of my purple necklace which is great news towards my fund! Amy helped Mummy make her very own one so she can wear it for me.
Every now and again something happens and Mummy and Daddy have to remember that I am very poorly. If I wasn't in hospital, having drugs and being looked after then I really shouldn't be here at all. I am because at the moment the Doctors here can support my illness, by helping to control my fits and help me with my breathing. It isn't fun for any one who is in hospital, because they are sick. And it isn't fun for people who have to just sit and wait for you to die. I am only 5 months old (on Friday) but I'm deaf, my liver is enlarged; I can't eat for myself and I can't very well go to the toilet myself; I cant move my body or neck, and can't focus very well. But I am loved. More than anything and for now - thats the best I've got. Mummy and Daddy try and find things to do while they watch me so as not to go mad and then they just have to wait and see what other horrible thing this illness will throw at me.
I know that Mummy loves me because she is always taking photographs of me and tells me how beautiful and special I am. I would like to be at home with my family more than anything else in the world. But sometimes you can't always get what you want, you get what you need. (Thanks Mick Jagger.)