How to get the best out of this blog...

All blogs post are more recent first, if you want to read about Ellie's Journey I'd suggest starting from the first post back in September 2011 (October Posts) and read on Chronologically from there. It will make more sense and you'll get to meet the little girl who gave my life purpose.
Thank You for reading - every new reader shows that she has met another person and in her short life made such an impact. x

Tuesday, 16 August 2011

A Post about post

We received post today for Miss Eleanor Prince. It was a statement from her Child Trust Fund. Something we have neglected to cancel as yet. The letter accompanying this statement is written directly to the beneficiary, Miss Prince, it sent a shiver down my spine.
I read briefly some of the conditions of the letter and the trust fund on the rear, mentioning the accessibility of the fund on her 18th birthday. That was a pretty big punch in the stomache. When I'd picked myself back up off the floor Dan telephoned the bank.

Sadly their response was a simple 'just bring the death certificate in to the branch and we will close the account and transfer the money', no 'I'm sorry for your loss Mr Prince'. Cheers Nat West.

Friday, 5 August 2011

Angel Tribute Video

This last week in Omaha in America a large group of families got together for the first ever Peroxisomal Biogenisis Disorders Famiy Conference. We didn't go obviously, its a long way and a lot of expense, but this video was screened during the conference. I'd warn you now - its not the easiest thing for anyone to watch. And I'm still shaking now, i think it's just about broken me. But she's there, our little star, shining brightly, with all those other beautiful babies that lost their lives too soon. I send out the biggest hug to those families who know just how much it hurts.

Thursday, 4 August 2011

Tick Tock

On Tuesday we became 5 months further away from our baby girl. Which means that we are on our way to our slow and excruciating 6 months culminating in what would have been a magical fun birthday celebration.
So then what to plan for - running away, pretending like it's not happening but all along knowing that the 'right' thing to do is to face up to it and do the day...experience the pain, to help you move on, to gain the 'closure'.
But what if you dont want the closure, what if you want to stay in the world where she still exists....where its still a bad dream and you will wake up?

I could never fully explain the sickness that wallows at the bottom of your stomache on a day to day basis that comes from losing a child, but people lose happens...i've unfortunatley come across this more often since losing my child. People gravitate towards each other, to share their losses. And thats good, believe me, it's helpful to have that silence where people can sit and 'just know'.
But it seems to me that we are missing something....other people seem to be able to celebrate these 'would have been' birthday's and send balloons to the sky, to hold other peoples children or to live on through those children they all ready have or for some which is of course beautiful, they have new babies on the way. They get a chance to live again.
Ellie was a scientific miracle, a NHS gift from IVF. And she will probably be the only one. And getting your head round that is tough, when babies are born everyday to those unworthy, unwanted. Its crappy. And I'm not after sympathy. Just wanted to have a moan,  to say 'Hey you know what, infertility is a painful business, and to my lovely friends who are also struggling to get the family they deserve, be brave and amazing  and have hope. Because in spite of everything, I still have hope that I will get to be a mummy again one day. (Preferably before I go grey!!)