Sunday 23rd January - Back in the Box

I hadn’t settled overnight keeping Daddy awake so it was no wonder he didn’t get up until after nine, I’m not sure what Mummy’s excuse was though, rolling in at 9.30, black mark against her name. I started the day being looked after by Knitting Nurse Helen and had a bit of a wobble just before my breakfast. I needed to have oxygen wafting while I ate but nearly stopped breathing; everyone was watching me very closely. I finally fell asleep with my eyes open just to confuse everyone.

                   It’s continued to be a bad day today; I have been mostly uncomfortable, coughing and crying with tummy ache and bottom ache and also lots of hiccupping. No one seems to be able to sort it out and now I am so fed up and grouchy I don’t know what to do with my self. Mummy and Daddy keep looking at me all puzzledandconfused.com. They keep moving me into different positions, and checking my nappy, then picking me up, putting me down. Suction on, off, in, out, don’t forget enemas and strawberry juice and a new one nurofen.

I think it makes them think that they don’t know what to think!

 

Mummy and Daddy have had to talk about when I die and what my funeral might be like. Mummy is reading a book that the hospice lady gave her; it’s got a white cover with a white lily one the front and has lots long of words in it. I think she found it hard to read while she was crying because the words were all blurry, so Daddy put it away for a while and said they would look at it another day.

Because I was grizzly Mummy thought it would be relaxing to listen to some music and she put on a special classical CD made by my little friend Will’s Mummy. That’s him on the cover! Hey Will, Hey Jan! Then I listened to my Lullabies, but they still didn’t make me sleep. Mummy wonders if it’s my tooth and has had a good old look at it today.

 

Holding my milk and my hand

                                                     Grandma came with Uncle John this afternoon, no sign of Aunty Sam as she has horrible studying for work to do so I’ve missed her today. Knitting Nurse Helen has had to go home early as she is poorly so Nurse Cynthia came in and made coffee and tea. The ward has lots of white spaces on the board but you aren’t allowed to say q u i e t just like you can’t say h o m e. ;-) Grandma brought a beautiful picture that has been donated for my auction, Cynthia likes it very much and kept pretending to steal it.  

Uncle John has got pictures of his shiny car in a shiny magazine, on the front page, a bit like Daddy in the Newspaper. Daddy wishes that our Camper was pretty enough to be in a shiny magazine, ‘One day’ he sighed.

 

                                                                                                   More in the news, I had a mention on http://www.parkrun.org.uk/reading/News.aspx because of Wendy’s 50 mile trot next weekend. She asked Daddy if the Reading Post could do a story, they are very welcome of course! Thanks for the extra publicity Wendy and big kisses to you and your feet. (Give a shout to my Nanna who lives in Bracknell and Uncle Jonathon, Aunty Julia, Beth and Thomas who are in Maidenhead hee hee.)

 

I was very late having a bath because Mummy isn’t keen on taking my probe off my foot, apart from the fact that is usually smells all yucky and sweaty, she’s worried that the doctors won’t be able to read my saturation and heart rate levels if I’m not plugged in.

So I had my bath with people on hand: ‘Doesn’t do Poo’ Sharon and the lovely Jade helped with my bath and then afterwards I was massaged from head to toe, finally I was able to relax and just about fall to sleep. But then I was too sleepy for my brain and it keeps forgetting to take breaths. After about an hour and a half Sharon said the immortal words, ‘I think we’ll have to go back in the box’. So, I’m still awake, I am now in the box, its Mummy’s bedtime and everyone including me, is exhausted.