I was born on the 4th of September 2010.
On March the 3rd 2011 at six months old I died, because of a rare genetic disorder called Zellweggers Syndrome. I have lived because of people who loved me more than anything else in the whole world. This is my lifestory...
How to get the best out of this blog...
All blogs post are more recent first, if you want to read about Ellie's Journey I'd suggest starting from the first post back in September 2011 (October Posts) and read on Chronologically from there. It will make more sense and you'll get to meet the little girl who gave my life purpose.
Thank You for reading - every new reader shows that she has met another person and in her short life made such an impact. x
Saturday, 16 October 2010
Wednesday 15th September
Everyone loves my cow sleep-suit, I think I'm setting trends in the special care unit.I'm sitting on nurse, Louise's lap here, she helped me feed from a bottle for the first time.
She isn't trying to choke me here - I don't think?
Everyone loves my cow sleep-suit, I think I'm setting trends in the special care unit.I'm sitting on nurse, Louise's lap here, she helped me feed from a bottle for the first time. 
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