I was born on the 4th of September 2010.
On March the 3rd 2011 at six months old I died, because of a rare genetic disorder called Zellweggers Syndrome. I have lived because of people who loved me more than anything else in the whole world. This is my lifestory...
How to get the best out of this blog...
All blogs post are more recent first, if you want to read about Ellie's Journey I'd suggest starting from the first post back in September 2011 (October Posts) and read on Chronologically from there. It will make more sense and you'll get to meet the little girl who gave my life purpose.
Thank You for reading - every new reader shows that she has met another person and in her short life made such an impact. x
Saturday, 16 October 2010
Saturday 18th September
The doctors had to come and see me in the night because I was being very sick. They have decided that I need to go to a special hospital and have arranged for me to go to Alder Hey children's hospital next week.
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