Tuesday 23rd November

I freaked Daddy out this morning during breakfast at 6am by deciding to hold my breath, only for a few minutes, Daddy has caught me doing this twice now and he says its not funny and rubs my tummy up and down vigouously and blows in my face. I think its amusing to to see if I can make my lips turn blue, I'm not sure that Daddy agrees. I'm not sure why I do it?
I slept again til 9am and then I woke up before Mummy woke me, I had a lovely wash followed by a head massage, this is to help the scales on my head otherwise known as cradle cap.
I'm starting to have extra brain medication today after Dr Burns said, I quote, my "porky" weight gain (How rude!;-)) and more latchelose, which seems to be hitting the spot, he suggested I could have 5mls twice a day but as he wasn't willing to come change my nappies, Mummy said we'd keep it lower for now.


I had a early breakfast because Ann my physiohterapist was due, she also brought an Occupational Therapist called Alison today. She is looking at ideas for things which will help me like seating for me to keep my heavy head upright. She watched me do my exercises with Ann.
Mummy really wants me to go swimming, like any normal baby and asked about this today, because I am ill they will have to check with Dr Burns that I am 'clinically' well enough. If he says yes, once my immunisations are done Ann said she will arrange to go for posh swimming called Hydrotherapy, Its in a small pool where its quiet and the water is warm, Mummy says it sounds 'lush'! She has been busy looking for a swim hat to tuck my nasal gastric tube into. (NGT for future reference)
I am going to have a personal sensory room experience next week with Ann at Monks Lane Children's centre, their sensory room sounds really good, Daddy wants to get more ideas for my bedroom.
Mummy had planned to go for a walk with our friends from Aquanatal but we ran out of time this morning, she was disappointed because it was such a nice day, but I was very tired after my session and slept lots over lunch, Its better that I get my sleep, as I'm still having small fits. :-(
Daddy and Mummy went back to the Pharmacy to get my milk...even after sorting out a new prescription the company who supply them have messed up my milk order again, I wont have anything to drink at this rate - its a poor do. Mummy says she knows that she is rubbish at maths but even she knows that 12 bottles are not 84 bottles. So now we will have to go back again tomorrow.


We went to Dagfields Antique centre this afternoon as Mummy wanted to buy some nice jars for the kitchen, I wore a new hoodie that Great Aunt Sally and Great Uncle Roy had bought for me (Thank You - it looks good with my hat because without it Daddy said I looked like a boy) Just as Daddy was about to get me out of the car I decided to be naughty and hold my breath again, I realise that this is upsetting Mummy and Daddy but I'm going to do it anyway, I like the fuss - they were going to head back home but I was ok really because Daddy made me cough, so he decided to carry me round with him so he could keep a good eye on me. All those antiques were boring so I slept while they wandered around.

When I got home Mummy let me try on some other new clothes that Daddy's boss had brought for me that we too big previously, they are a bit pink but Mummy says the bunny on them is cute. 

Look at my full 'porky' tummy!!