I was born on the 4th of September 2010. On March the 3rd 2011 at six months old I died, because of a rare genetic disorder called Zellweggers Syndrome. I have lived because of people who loved me more than anything else in the whole world. This is my lifestory...
How to get the best out of this blog...
All blogs post are more recent first, if you want to read about Ellie's Journey I'd suggest starting from the first post back in September 2011 (October Posts) and read on Chronologically from there. It will make more sense and you'll get to meet the little girl who gave my life purpose.
Thank You for reading - every new reader shows that she has met another person and in her short life made such an impact. x
Thank You for reading - every new reader shows that she has met another person and in her short life made such an impact. x
Monday, 13 December 2010
Monday 13th december
No pictures, you don't need to see how poorly our littlemgirl is, after three scaring close seizures in the night things are the same yet somehow worse, kind family and friends we are Ellie is slowly losing her voice for this blog as she is so tired. Please keep her in your hearts and thoughts.
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Ellie we are thinking of you and send all our love. Margaret and Grandad Adrian xxxx
ReplyDeletethinking about you ellie and your mummy and daddy they are doing a fab job big hugs to you all
ReplyDeleteYou are all in our hearts all the time. Love Nicki and Simon x x
ReplyDeleteBig hugs to you Ellie. Thinking about you...stay strong.XXX Your Mummy & Daddy have been so amazing big hugs to them too. XX
ReplyDeleteHi Ellie I am sending my little friend lots of sloppy kisses! Thinking if you always. poppy xxx
ReplyDeleteThinking about you all the time Ellie, along with your mummy and daddy who are being very brave and strong for you. xx
ReplyDeleteThinking of you all, Hx
ReplyDeleteOur thoughts are with you and your beautiful little girl. Karen & Nigel xx
ReplyDeleteThinking of you Ellie and your wonderful Mummy and Daddy, sending lots of love xxx
ReplyDeleteThinking of you Ellie. Big hugs for everyone. lots of love
ReplyDeleteTrish & Chris xxxx